Understanding my Parkinson’s through measurement

When I was offered the chance to try the Adamant Health measurement and analysis service, I was curious – but also practical about what it would mean in my daily life. Would it be complicated? Would it limit what I could do? Would it actually help me understand my Parkinson’s better?

Looking back, the experience was much simpler than I expected. Getting started with the measurement was straightforward. A nurse installed the measurement device on my forearm and explained to me how everything works. Then I went home for my three-day measurement. I received some information material, and while I didn’t go through everything in detail at the beginning, I could always check it later when needed.

Wearing the measurement device in daily life

Before the measurement, I was a bit concerned about whether the device would affect my routine, especially my exercise. I like to stay active, and I wasn’t sure how much I would need to adjust.

In reality, it didn’t disturb me too much. But of course, you are aware that you are wearing something. I made a few small adjustments along the way; for example, I chose slightly looser shirts so wearing the device would be more comfortable. And instead of removing the device for a shower, I created a water-tight solution with a plastic bag and skin tape.

During the measurement, I was able to continue my normal activities, including training sessions. After a while, the device mostly faded into the background. It stayed in place, and overall, it didn’t stop me from doing what I wanted to do.

I did have a mild skin reaction from the electrodes. In hindsight, I probably underestimated the sensitivity of my skin. Next time, I'll use electrodes for sensitive skin.

Keeping a diary, a simple tool that made a difference

During the measurement period, I also kept a diary in which I recorded my symptoms, medication intake, and overall well-being.

At first, I thought of it as just something to fill in. However, I take medication frequently, sometimes every two hours. And like many people, I occasionally forget – did I just take my pills, or not? With the diary, I could simply check. It’s a small thing, but it helped me manage my medication more confidently. If I wasn’t sure if I had taken my dose, I could confirm.

Paying more attention to myself

Another thing I noticed was that the measurement made me more aware of my own routines. I found myself thinking more about timing – when I take medication, when I exercise, how my day is structured. Not in a stressful way, but in a more focused, intentional way.

Interestingly, during the measurement period, I didn’t experience any “bad days.” Perhaps the extra attention I paid to my routine played a role in that, who knows? Of course, it might have been interesting to capture my symptoms during a more difficult period as well.

Looking ahead

I haven’t yet discussed the results with the neurologist, so I’m still curious about what the data will show and how it can be used to better understand and control my symptoms.

I’m hoping it will give me more clarity – not just what’s happening now, but also about what comes next. And that it will help guide decisions, whether about medication, lifestyle, or future treatment options.

Even before that conversation, the experience itself was useful. It showed me that monitoring can fit into daily life, even if it requires a bit of adjustment along the way.

Until next time,
Riaz

Riaz Zabihian

Riaz is Adamant Health's patient voice. He has been living with Parkinson’s disease for over a decade. In his blog, Riaz will share his personal experience of life with Parkinson's disease to provide support, inspiration, and practical advice for others affected by the condition.